Talk:Ehlers-Danlos syndrome

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Some text in this article was originally taken from http://ghr.nlm.nih.gov/condition=ehlersdanlossyndrome (public domain)

ednf.org says there are six types, not ten

Please correct it, with a good reference. JFW | T@lk 08:50, 12 Oct 2004 (UTC)

OK, well done. JFW | T@lk 08:51, 12 Oct 2004 (UTC)

Contents 1 Accuracy questioned - Source requested 2 Speculative Statement Removed to Talk Page 3 retro-edit 4 Photo

[edit] Accuracy questioned - Source requested

Bone deformations such as pectus excavatum (sunken chest) from extra-rapid bone growth may present early.

That is accurate for Marfan Syndrome, another connective tissue disorder, but I question whether it it true of EDS. Source? Paleorthid 16:28, 2 Feb 2005 (UTC)

I found this source [1] linking ED and PE, but it is kind of a "non-mainstream" nutrition-is-everything site. Gzuckier 16:00, 19 December 2005 (UTC)

I have a friend with ED, who would be expected to know of such things, and she said that she has never heard of pectus excavatum being a symptom herself, so if PE is a known symptom, it would be reasonable to assume it is rare.

It is not known whether some of the genetic variation represented by the various subdisorders of Ehlers-Danlos syndrome or other connective tissue disorders might not represent survivals of genes (rather than more recent harmful mutations of genes) which genetic variations were not problematic before humans began cooking meat a half-million years ago, or ceased using meat jerky and raw milk, thus eliminating sources of raw collagen from the human diet.

This appears to be highly speculative. Wouldn't digestion destroy raw collagen regardles of cooking? Source? Paleorthid 16:28, 2 Feb 2005 (UTC)

I can't imagine any circumstances where collagen from the diet could possibly be utilized without being broken down into amino acids. Plus, there isn't any collagen in milk. Gzuckier 05:38, 3 Feb 2005 (UTC)

[edit] Speculative Statement Removed to Talk Page

It is not known whether some of the genetic variation represented by the various subdisorders of Ehlers-Danlos syndrome or other connective tissue disorders might not represent survivals of genes (rather than more recent harmful mutations of genes) which genetic variations were not problematic before humans began cooking meat a half-million years ago, or ceased using meat jerky and raw milk, thus eliminating sources of raw collagen from the human diet.

[edit] retro-edit

I restored a big hack-job from last october, but now the subsequent edits like the infobox have to be readded. I'll do some too if nobody does them first. Gzuckier 15:53, 19 December 2005 (UTC)

[edit] Photo

I am removing the "eric the midget" photo. I am far from sure it is appropriate here. The editor who put it in cited no sources. The filename is offensive. There is no evidence presented here that this is a useful mainstream illustration relating to EDS. I cannot see how a celebrity photo is likely to be useful and informative here. If I am wrong on some or all of this do please educate me. 82.45.248.177 18:45, 10 July 2006 (UTC)

I've re-deleted the image. If there is a verifiable source that he has EDS, please provide it. If not, please do not re-add it to the page. Sue Anne 22:55, 13 July 2006 (UTC)

I'm not stating whether I think the picture is necessary, but that it is well known and documented that Eric suffers from this disease. Here are three sources:

• marksfriggin.com (It's on the 6/28/06 listing.)
• Eric's myspace page
• howardstern.com (This does not state that he has the syndrome but mentions his request for Howard Stern to donate $250,000 to the Ehlers-Danlos National Foundation.) Foday 06:19, 14 July 2006 (UTC)

I've removed the "eric the midget photo" for copyright infringement and I am opposed to it being returned into the article. That eric has EDS is not critical to my opposition. The image serves the reader very poorly as to conveying an understanding of the appearance of EDS. For one, the image source doesn't use the image to illustrate that particular point, making it a low quality source. For another, the reader cannot determine where EDS symptoms end and the condition of being a very small person begins, rendering the image useless. -- Paleorthid 20:05, 16 July 2006 (UTC)

Absolutely. As stated above it is a celebrity photo with an offensive filename. It is impossible to understand why it should be in the article. I will delete it every time I see it: I have nothing to lose on wikipedia so banning me for reversions is no threat. If people want an EDS photo they can find a better one - if it exists (lots of people with EDS do NOT look different from those without) and one without an offensive filename. Using this one is lazy, offensive and stupid and those wanting to should be ashamed of themselves. 138.37.199.199 07:55, 17 July 2006 (UTC)

Get off your high horse. I'm not saying that the photo belongs in this article, but you don't have to slam Eric the Midget or the file name of the photo. Yes, Eric is a celebrity, and he is known as "Eric the Midget"; the file name is simply descriptive. Foday 16:35, 17 July 2006 (UTC)

As the original poster I'd like to direct your attention to the picture of The Elephant Man on the neurofibromatosis and Proteus_syndrome pages. If the photo needs additional context to justify its inclusion I can work on that. Please remember that Eric has one of the most sever forms of this disease, and he is the only reason that millions of people even know it exists.

Can the copyright infringement issue (see above) be satisfied? If not, weighing justification for inclusion is meaningless. This photo violates wikipedia policy. -- Paleorthid 18:34, 20 July 2006 (UTC)